Tuesday, February 28, 2012

Medication Update


I thought for sure I was going to have to leave work early last Friday. Kevin had a meltdown right after getting his medications at school. I think it was the worst his teacher has ever seen him, fortunately he seemed calm down after she took him back to the classroom. The plan for Kevin after school that day was to go with her for a few hours until my brother got home from work. As it was he finished an hour sooner than he thought, so he was able to get Kevin sooner. I called the new doctor to see if it was ok to take out the Risperdal that he was still getting at school a couple of days early. This way I could watch him on Saturday and Sunday to see how he would do without it. Well, let just say I didn’t get to the grocery store as planned on Saturday with the boys. We headed out to stop at the library and store, but Kevin was already out of it. I was hoping that seeing the books in the library would help him. He loves to get books on animals in the kids section, but I had to take him out while his brother finished checking out his books. I was wondering if Kevin was hallucinating on the Prozac and decided to not give him his night time dosage. He seemed to get better that night, so the next day I held off on giving him the afternoon dose until late afternoon. That night I decided to reduce the Prozac by one pill on my own. I wasn’t sure about sending him to school Monday morning, but decided to do it in the end. His teacher said he was doing good and very alert when I saw her at school that morning. I had gone in to pick up the Risperdal and Prozac, so they wouldn’t give it to him anymore. I’d called the doctor to let them know what I’d done and about the fact that he may be hallucinating after all with the Prozac. He had indicated that he thought that could be one thing that was going on with Kevin during our visit, but we needed to address the Risperdal problem first. So far I have not seen any bad effects with the Fanapt other than the fact that Kevin now gets cold. The Risperdal would keep his body temp up so much that it surprised me the first time Kevin was shivering after his shower. I had to dig out his bathrobe in the back of his closet. Where we stand now is the doctor said it will take 3 weeks for the Prozac to come out of his system completely and he gave me the option to up his Fanapt to help with the hallucinations. I chose to ride it out first. Maybe in a couple of weeks I can talk to the doctor about taking out another dose of the Prozac, but for right now Kevin’s manageable and still singing his happy songs. I just don’t want to add to his medications if I don’t have to. Hopefully in a month things will be back to normal, which is Kevin alert and participating in school once again.

In the photo Kevin is showing me his new toy Frog. Funny how he can be out of it, but as soon as you go to take his picture he’ll look at you and say cheese.

Wednesday, February 15, 2012

New Doctor, New Out Look

As several of you know we had an appointment yesterday with Kevin’s new doctor. It was nice to have him actually looking at Kevin and talking to us directly instead of furiously writing notes in his folder. He seemed to listen and pay attention to what we were saying about Kevin. Poor Kevin was curled up in a ball with his fist clenched tight over his head most of the time. Once he did look up and looked around in amazement as to where he was and the doctor totally missed that one. So, the results are a new medication slowly removing the Risperdal. Let me make this clear. Anytime you are removing a psychotic medication you do it slowly or you can make things worse. After we change him over completely to the new medication and make sure it works then we will look at removing the Prozac and reducing the Ativan to an as needed usage. It will be nice to have fewer medications and less confusing for the other people in his life that help with his medications.

As for the new doctors opinion of the Gluten Free diet I think he kind of sits of the fence with that one. I think most doctors do truthfully. He did mention that it’s expensive to do and I agreed with him. I also explained my financial situation and told him how I cut costs such as making Kevin’s bread over buying a loaf of bread for $6. I also explained that this past summer was the first summer I didn’t have to call the doctor for any help with Kevin. What a blessing that was.

Overall I fell positive about this new doctor and we’ll see how it goes with the medication.