Thursday, October 18, 2012

Special Olympics Skating 2012

Even with a bite of a rough start this morning Kevin pulled off a gold medal for the 30 meter straight line skating event.  He's not the fastest skater, but he loves it!  As for this morning we'd had been working with his medication dosages, and if you remember I mentioned he was having issues a few weeks ago.  Well the new dosage after a week and half of trying turned out to be not such a great idea. His teacher called me and said he was roaring and throwing his arms in the air. Fortunately I was on the road that the school is on and pulled right into the parking lot.  Sure enough I could hear him as I headed for the office to sign in.  As soon as I sat down next to him he seemed to snap out of it, but to be safe I gave him half an Ativan.  We waited a few minutes to make sure he was fine and off he went to skating with the rest of the class.  After school he was his old self. Even pulled out the paper that he wrote at the end of day saying what he did in school today and started reading it to me. Going back to the old dosage and we'll just see how he does.

Monday, October 8, 2012

He asked for Help

I know it's been awhile since my last post, but truthfully not a lot has been going on.  Kevin has been doing wonderful in school.  His teachers have been telling me he's starting to participate in class again.  In the afternoon he seems to be going down hill a little and it may mean adjusting his medication in the afternoon.  I'll wait and see what the doctor thinks before I say more about that.  Last night was a first for Kevin. In his own way he asked for help with opening a bottle of water.  He was watching me get his medication out last night and I told him he'll need a drink. He got a bottle of water out of the refrigerator and said "Need help, here."  I'm never sure if I should jump up and down cheering when he does these things.  LOL I don't want to make him self conscious after all.  I'm sure that's one of the many reasons why he whispers at times.  But, last night was no whisper.  I said ok, opened the bottle for him and he said "Thank You."  I do try to teach my children manners after all.  So, small steps can lead to big progress if you give it time. Am I sticking with the casein free diet along with the gluten free diet? YES!  Maybe a few years down the road I might try a little cheese, but not anytime soon. Not with the positive feed back I get from his teachers.