Monday, March 26, 2012

Is it my imagination

Is it my imagination that I reduced Kevin’s Risperdal from 3 full pills a day to 3 - ½ pills a day?

Is it my imagination that for the 1st summer ever I was able to get through it without having to call his doctor for help, because he didn’t have any agitation issues that summer?

Is it my imagination that when Kevin went back to school in August that all of his teachers noticed a difference and wanted to know what I was doing for him?

Is it my imagination that he seemed happier and more alert during the summer?

No, none of this was my imagination and it most certainly it wasn’t my imagination that he was very alert last night watching his movie, singing & quoting the movie the whole time. I never said this diet would cure him. At his age it’s too late for that, but I did say I was out to help him. Summer is coming and I want another summer without issues.

Sunday, March 25, 2012

Call First Before You Go

The boys and I were out shopping for sneakers yesterday and I thought we'd make it a day with some GF Pizza at a restaurant.  I checked online with one of the GF Registries listing for a restaurant.  It was a little out of the way, but I thought it will be a nice change & surprise.  We got there, sat down and the girl says we don't have gluten free pizza here.  They're web site says they have it.  True some franchises do have it, but not that one.  I looked at they're menu and didn't see anything for Kevin.  The girl said he could have a salad and I looked at her saying I'm noting going to eat Pizza in front of him.  In the end we left and drove all the way on the other end of town to a Restaurant that my brother told me about over the phone and knew they had GF Pizza. Mellow Mushroom saved the day.  Moral of the story call ahead to make sure they actually have what you want.  Even with the Mellow Mushroom some of their restaurants don't have gluten free pizza. Yes, I went back on the GF Registry and posted a review for that location explaining that that location doesn't have GF Pizza.

Monday, March 19, 2012

3-4-12

This was a pleasant surprise one night.  My hope is to get Kevin back to this on a daily basis.  I just went over to school to drop off Kevin's afternoon medication and remember last year when Kevin had a meltdown at school.  These two staff members brought him outside for me and these two men were huge.  Made Kevin look so small between them.  They looked at me with so much doubt and asked "Are you going to be okay with him?"  Now you have to realize that I'm a tiny person and I just smiled saying yap I do it everyday with him.  I so don't want to go back to those days.

Saturday, March 10, 2012

Special Prom Dance


Kevin went to a Special Prom Dance yesterday at one of the other High Schools. He had wonderful time. He doesn’t know how to dance, but we have noticed lately that he has been wiggling to the beat of some of the songs in his favorite movies. The Goofy Movie and the Extremely Goofy Movie (that one has a lot of music from Saturday Night Fever Era). My Mom was here when he got home and it has been a while since she has seen him due to the fact that she had been sick for awhile. She called me at work laughing so hard. He was Mr. Talkative saying all kinds of things about the party. She asked him if he wanted to talk to me on the phone and he said “oh yeah of course.” I could hear him in the back ground the whole time. He told me about the smoke, bubbles and something was green & white. When I got home he said green & white lights. He got a silk boutonniere to wear, which I’ll save for him. I’m so glad the new medicine was working for him yesterday morning. It seems to be working for him up until late afternoon. Right now I don’t want to do anything until we go back for his follow up next week. I’m so thrilled for him!