Wednesday, June 29, 2011

What a difference a Day Can Make

Maybe I shouldn’t be celebrating so soon, but this morning is so much better than yesterday morning.  Yesterday morning Kevin woke up at 5am going through all kinds of fits.  I got him his medicine and had him go out in the living room, so he wouldn’t wake his brother.  I had no idea what had caused this mood swing.  He did sound stuffy to me, so I gave him a sinus pill and made him something to eat.  After an hour or so he fell to sleep on the sofa.  I weighed all the ideas in my head as to why he woke up that way.  Maybe he didn’t sleep well and was just cranky, but this was too much like the old days before going gluten free.  I have reduced his Risperdal by ½ a pill and I felt sure it wasn’t that.  I can usually tell within a few days if a new dosage is going to work for him even though the doctor always says two weeks and it had been a full week on the new dosage.  Then I remember a conversation with a mother years ago at Coffee Time, which is a get together for parents with autistic children.  She had made the comment that it can take a few days to see the effect of casein or gluten proteins.   She was talking to me about the diet her sons were on and I just brushed it off.  I wasn’t interested in going that route with Kevin.  After remembering that conversation I went to the internet and double checked what she had said to me years ago.  Sure enough it can affect him two days later.  What happened was my brother made cinnamon rolls Sunday morning.  Boy, did they smell wonderful.  Kevin was still sleeping and the last one up.  There were two left and I was feeling guilty for not wanting him to have one.  So, I decide to give him half of one (they were small).  I thought it can’t hurt; it’s such a small amount.   He’s had no gluten for a week and half.  I had been reducing it out of his system again, because he had trace amounts earlier in the month.  He had been doing so well once I’d reduce the gluten out, so I can’t help but wonder if the ½ cinnamon roll was the reason for yesterdays fit in the morning.  I’ll just have to watch him and see how he does the rest of the day.  So far he seems fine.  On a lighter note, Kevin’s respite/teacher worker stopped by to have me sign papers.  He was in the hot tub relaxing.  Yes, a hot tub.  I have it turn down in the summer for him to relax in and if I want to use it I just turn it up a little.  Anyway, she left and when I turned around and look at Kevin he had this odd look on his face.  He looked at me and said “Well?”  I laughed and explained that she would come by another day to take him out.  He seemed fine with that and went back to floating around in the hot tub.

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